Stupid Hospital! @#$%^&*!

Ok so I'm a little upset, can ya tell? Finally today after over a week of trying to talk to somebody and or get a straight answer on why Chris's CT scan hadn't been even set up yet...today I get a call from his doctors office saying "The Radiologist doesn't feel comfortable doing full sedation on an child OVER 6 years old."

NOW CAN SOMEBODY TELL ME WHY THIS TOOK THEM OVER A WEEK TO FIGURE THIS OUT!?!?!

She set the CT up in Toledo, but Toledo childrens has nothing open till November 2nd now we have to wait for 2 MORE weeks :( Nope I am NOT a happy camper!!!

PJackman

Chris had another headache tonight after being fine at church earlier in the day and fine playing with his friend all day... came in said he head hurt he couldn't eat dinner then he laid down and fell asleep(samething he's done the last 3 times in the last couple weeks) When I called the Dr. Friday to ask why they haven't set the CT scan up yet they said the person that sets up the CT scans is not in on Fridays and I should get a call tomorrow,(We went to the Dr. on Wednesday they had all of Thursday to figure this out!) If they don't call me in the morning I might just have my own Mommy Meltdown!

Andy Grammer - Keep Your Head Up (Live at the Roxy)

Even when Chris has had a bad couple of days I thought I would share what a awesomely upbeat kid he is, He had school, eye Dr., OT, and Group Therapy all without a break today. Even though his eyes are still bugging him and asked him do you still want to go to OT and group today he said "Ya Mom I'll be ok"
He heard this on the radio on the way home and was just now singing in the shower at the top of his lungs lol :)

Houston we have a...Misunderstandings...Migraine!

So apparently we've been having a communication problem with Chris my 8 year old that none of us (us, the Dr, or the school) realized for the last 2 weeks. About 2 weeks ago Chris started screaming at school that he had in the middle of reading class that he had something IN his eye, he was taken to the nurses office and she didn't see anything in his eye but he flushed it out anyway just to be sure apparently recess is right before reading class and she thought he might have rubbed some dirt in his eye. His Dad, he and his brother have eyelashes a woman would kill for lol so I thought it happens to his Dad all the time, an eyelash falls in his eye and they are so big and long that they hurt like heck, maybe it just fell in and fell right out and after he rubbed it and with his sensory issues it just feels a lot worse then it does it to him.... Then last week he told me something was in his eye again, not as bad at the first time but still bothered him all day. Last night Chris got home from school and started crying again "Something is in my eye" So I'm thinking ok that's it we're going to the eye doctor tomorrow....then he went in his room and layed down and fell asleep, Chris the kid that doesn't sleep fell asleep, what the heck! and without having any after school snack, and that's very unusual for Chris everybody knows hes a chow-hound...didn't wake up till around 8 o'clock so he slept for about 3 or 4 hours and he didn't want any dinner either and he said he eye still hurt and he kept yelling to turn off all the lights , (OK now I know somethings really wrong here) so I'm asking if his head hurt not just his eye, does his stomach too, and is the pain in the back or the front of his eye...yes his head hurt, yes his stomach hurt, and the pain is in the BACK or his eye NOT the FRONT...after a light bulb went off in my head (Oh jeez he's doesn't have anything in his eye he's having migraines) he promptly throw up all over me and the couch and my coat that was on the back of the couch! Uuuug yuck :p



So we went to the Dr. today, the Dr. agrees (sounds like a migraine) and set up a CT scan for his optic nerve (because we have a history of migraine and ruptured aneurysms in my family and I have migraines, I get scanned every 2 years) she was worried about the pressure in his right eye so she's trying to get him in ASAP, only problem is they only do sedation for kids on certain days, so the silly nurse is asking me "Do you think he can sit still for 45minutes?" Are you kidding me? The kid has Autism and Dyspraxia he doesn't sit still or have an attention span for more then 5minutes. So they are calling me tomorrow to tell me when his CT is....that all I got for now I'll let you guy know what happens next...please pray everything go's fast and come out ok!


PJackman

This Kid Come's with Instructions! What? No IEP?

I can't say I wasn't totally nevus about this year with Chris even though I really liked the teacher from the first..you just never know whats gonna happen, first year without an IEP ...its not that he has any behavior problems, its just that some days (not as often as it used to be but still quite a few day) its just isn't possible for Chris to sit still or pay attention, or stop talking non-stop without being prompted over and over, some days it just not possible for Chris to be organized, sometime nothing will get done in Chris's world without step by step instruction being given...not even sleep. Don't get me wrong most days you wouldn't even know anything was going on with him and he has great days....but sometimes WoW! he has his really bad days. So being the crazy Dyspraxia-Autism Mom I am I bring a GIANT folder I have printed out every year he has a new teacher on Dyspraxia and PDD......Of course I have this folder hidden behind my back (because I'm a GIANT chicken) waiting to hear what the teacher has to say first. So the first thing the teacher says is "Chris is such a joy to have in class" and I've heard this before many times before because Chris is a very happy upbeat, funny, friendly kid...its really hard not to like Chris .....so I'm waiting for the "but" because theirs always a "but" were Chris is concerned, then he shows me Chris's test score ...average or above average on everything, then tells be how smart Chris is and that he was shocked when Chris started to teach the class one day "What do you mean? I asked" well apparently Chris like social studies and science and when the teacher started talking about president's Chris got up and started telling the class all about Abraham Lincoln and George Washington in detail and the all the teacher could do was stand their with his mouth hanging open and class was just looking at Chris like WoW!.... :) so I had to laugh because, well yeah once Chris likes a subject he's gonna talk about it non-stop.... "But" the teacher say......OK their go's the "but" ...."sometime Chris get a little distracted" that's when I know it was going to be ok because he didn't say this kids unorganized, or won't stop moving, or won't talking...so I described Dyspraxia to the teacher and he said " Yeah that sounds about right" oh so then I tell him..."I just happened to have printed up some paper on Dyspraxia and PDD if you would like to read them?"...."Yeah sure just send am to school with Chris"..."Oh no I have them right here"...so I hand him my GIANT folder and of course he's laughing at me and looking at me like I'm the crazy lady...that I am! :) So according to the teacher Chris is having a great year so fare with no IEP to instructing everybody on what to do next....Don't you wish all kids came with instructions?





PJackman

PDD, The danger of having a bestfriend that drops his T's&B's and a Mom with a big imagination :)

So before school this morning Chris fell down and scraped up both knee's and hurt his ankle (Dyspraxia sucks!) and so we drove to school instead of walked. So Chris is in the backseat this morning and he says "Mom that's a pimple." and I can't see him because he's in the backseat and I'm thinking your way to young to have a pimple kid, so I ask " Whats a pimple Chris?" and he points to the piTBull three doors down from his friends house across the street and says "That dog there Mom he's a pimple." Hmmm...so I ask "Who told you that was a pimple?" he says "Julius said it was a pimple and that I should be careful." so I say "No Chris that's a piTBull not a piMPle." so he say "Oh I was wondering why his face looked ok he looked like a normal dog to me." at this point I'm totally cracking up and getting this picture in my head of two 8 year olds running around trying to put ZITcream on this piMPle/piTBulls face...and me cracking up is probable confusing the pore kid more so I'm trying to calm down and tell him "Yes Chris you should be careful not to go up to any dog you don't know unless Mom or Dad is with you." so he says "I know Mom I was just wondering why Julius called him a piMPLe he looked fine to me." Me cracking up again......

Just saying sometimes the day sucks because of Autism but that doesn't mean that Autism has to suck the joy out of your whole life.

Everybody knows having a child with Autism or any child with a special needs or any parent at all for that matter is not all fun and games...but surrounding yourself with only the negative ...all you will ever get is negative, all you will ever teach them is negative...are children are worth WAY more than that. We all deserve (YOU as a parent included) to see the happiness and joy in life not only the bad. I realise that there are days that its just not possible to see the joy but please wake up tomorrow and smile forget about yesterday and start over with today, see something new that you didn't see before and go with it, find the joy and your children and other people will learn from you.

P.Jackman